The Spastic Paraplegia Foundation (SPF)

I mentioned in an earlier entry that there is a non-profit organization dedicated to raising awareness, advancing research, and finding cures for those challenged with hereditary spastic paraparesis (or paraplegia, depending on who you talk to)—the Spastic Paraplegia Foundation.  I want to use this space to add a few more details about it.

The Spastic Paraplegia Foundation, also known as SPF, focuses on two groups of neurologic disorders that are rare, closely related, and progressive—Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS).  Both are neurologic disorders that cause disruption of the voluntary muscles.  HSP and PLS are progressive in nature and may cause individuals to have major, life-altering mobility issues.

The vision of the Foundation (SPF) is seeing the day when all individuals with HSP and PLS are diagnosed, treated, and cured.

Their website—https://sp-foundation.org—provides individuals the opportunity to join, receive news and information on the latest findings and clinical studies, find a support group/event/fundraiser, and donate to fund medical research.  (Since it was formed, the Spastic Paraplegia Foundation has raised over $12 million for research!)

SPF can be contacted through their website—sp-foundation.org—or by calling 877-773-4483.

They are great folks and do great work.