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Resources



I swallowed my pride!
After months of thinking about it and going back and forth with the decision…I purchased a rollator (aka wheelie walker, walker with wheels, etc.).
Mar 232 min read


The MS Gym
Late in 2025, I saw some ads and Facebook posts talking about The MS Gym and I decided that I would give myself a Christmas present with my own membership.
It is awesome!
Mar 233 min read


Botox?
During my last visit with my neurologist, I mentioned that my spasticity (involuntary
muscle contraction/tightness) was really becoming a problem. It seemed that my legs
were always flexing. During the night when I was trying to sleep, I would often wake up
more than once with leg cramps.
Mar 111 min read


Trekking Poles
Trekking poles—some may call them modern walking sticks—are great devices that can help provide balance and stability to anyone walking from Point A to Point B. I had seen someone in my neighborhood using them and my physical therapist had me try some during one of our sessions. They seemed to help, so I went out and bought a pair. Trekking poles can be purchased online at Amazon or at almost outdoor/sporting goods store. I purchased mine at Bass Pro Shops (the best store
Sep 11, 20252 min read


Don’t Let Your Mobility Affect Your Ability
Athletic competition has always been a huge part of my life. Throughout the years, I played everything from baseball, football, pick-up...
Aug 12, 20254 min read


Canes
Learn about types of walking canes, tips for choosing the right one, and how different cane tips offer support, portability, and even self-defense options.
Jul 22, 20253 min read


"Let The Water Do The Work, Young Man"
A simple, low-impact water workout routine that improves mobility, flexibility, and balance—perfect for staying active without stressing your joints.
Jul 7, 20252 min read


People Are Good
The news can make the world seem dark—but my experience says otherwise. Since facing mobility challenges, I’ve been helped by countless strangers during stumbles and falls. Kindness is everywhere. Despite what the headlines say, people are good—and human decency is very much alive.
Jun 23, 20252 min read


Mobility Aids
“Motion is lotion”—and for those of us with mobility challenges, walkers and rollators can help keep us moving. From basic walkers to 3- or 4-wheel rollators with storage and seats, there are options to fit every need. Try them out, find your fit, and keep going—every step counts.
Jun 23, 20252 min read


Finding and Choosing a Medical Professional
After years of needing little medical care, my HSP diagnosis reminded me how important it is to find the right doctor—one who listens, cares, and supports your journey. I got second, third, and fourth opinions. It’s your body, your life—advocate for yourself and never stop striving to be your best YOU.
Jun 23, 20251 min read


The Spastic Paraplegia Foundation (SPF)
The Spastic Paraplegia Foundation (SPF) supports those affected by HSP and PLS—two rare, progressive neurological disorders impacting mobility. Their mission: diagnosis, treatment, and a cure for all. Learn more.
Jun 23, 20251 min read


Physical and Mental Challenges with HSP
Physical setbacks like HSP bring mental battles, too—from frustration and embarrassment to self-doubt and loss of independence. I’ve faced them all. Staying mentally strong takes work, but it’s possible. Try what works for you—and don’t give up. Stay positive, stay moving, and keep going.
Mar 27, 20254 min read


Don't wish for it. Work for it.
After my HSP diagnosis, I focused on managing symptoms and living fully. YouTube has been my best teacher—channels like Combating Spasticity, Rehab HQ, HT Physio, and Dr. Gretchen Hawley offer real strategies. My motto: Don’t wish for it. Work for it. This is my time.
Feb 11, 20252 min read


Self Defense
Losing mobility made me rethink everyday actions—including self-defense. I now use a cane, which offers both support and protection. Thanks to YouTube’s Matt Pasquinilli, I’ve learned walking cane defense techniques that build safety and confidence.
Dec 7, 20242 min read


NuStep
I’ve loved the gym since I was a kid, but after being diagnosed with HSP in 2023, my workouts shifted. The NuStep machine has been a game-changer—it supports mobility, strength, and cardio from a safe seated position. Great for anyone with movement challenges. Try it—you’ll like it!
Oct 17, 20242 min read


Fatigue
Fatigue is real—not laziness. Since developing hereditary spastic paraparesis, I’ve learned to manage mine through adjusted meds, sunlight, exercise, hydration, and cleaner eating. Small lifestyle shifts have helped restore energy. Don’t ignore fatigue—find what works for you.
May 2, 20243 min read


Looking for a place to help?
A great resource for mobility, balance, and overall wellness: FYZICAL Therapy & Balance Centers. With expert staff and advanced techniques, they offer therapy, pain management, and more. Each clinic is locally owned—check one out near you: fyzical.com.
Mar 12, 20241 min read


Roy
For years, Roy and I only exchanged brief greetings at the YMCA. One day, he shared his powerful story—how swimming and consistent pool time helped him regain mobility after being told he’d never walk again. Now 91 and thriving, Roy’s advice? “Let the water do the work.”
Feb 13, 20243 min read


Faith
I have spoken with a lot of people who have experienced a loss of some kind or who are facing a serious challenge. The passing of a loved one or losing a spouse through divorce. The loss of their job. An unexpected and unnerving medical diagnosis. Being in the middle of a situation and thinking “can I do this?”. All have utilized one common thing to manage their situation. Faith.
Oct 19, 20231 min read
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